Bone Marrow Transplant: One Year Status Update And Complications
Today marks the one year anniversary of my first bone marrow transplant. Despite a relapse last fall, things had actually been going really well. A bone marrow biopsy came back completely clean as...
View ArticleVision Update: Better Than Expected But Serious Damage Was Done
I had a followup with my neuro-ophthalmologist yesterday to see how my vision was improving after the issues I started having last month. I’ve tried to be optimistic and stay positive since first...
View ArticlePainful Headaches Thanks To Meningitis
Unfortunately my bad luck and health complications continue. Last week was a roller coaster of events. My ommaya reservoir, used to access my spinal fluid for samples and chemo, clogged because of...
View ArticleMore Leukemia, No Vision Improvements
I really can’t catch a break, can I? My latest BCR-ABL blood test that detects my cancer’s genetic mutation came back ever so slightly positive (like 0.01%). This isn’t a relapse but rather just some...
View Article34
Today marked the completion of my 34th trip around the sun. I spent the day at home due to fatigue and just generally not feeling great due to this latest IV medication I’m on. One of my sisters was...
View ArticleCancer Free (Again)
Last week I was told the great news that I’m once again cancer free! This marks the third time I’ve heard this news after my initial diagnosis and then my relapse. The Blinatumomab did its job after...
View ArticleTwo Years
Last Thursday, October 18th, marked the two year anniversary of my leukemia diagnosis. While I’m finally clear of cancer , I certainly didn’t expect it to take this long. But it’s also weird because...
View ArticleMy Cancer Just Won’t Give Up
Whelp, my latest Bcr-Abl blood test came back slightly positive for leukemia again. This means at least another round of the 28 day infusion of specialized medication that makes me feel like absolute...
View ArticleCancer Update For January 2019
Just a quick update on my cancer saga since it’s been over a month since my last update. My liver continues to be agitated due to my donor immune system attacking it (graft-versus-host disease). As a...
View ArticlePretty Bad News On The Cancer Front
Lots to report on today. Some of it is pretty bad. Back on January 24th, I got a bone marrow biopsy in order to more accurately determine the amount of leukemia present in me. The blood test I...
View ArticleLeukemia Has Won
Despite my best efforts over the past two and a half years, the leukemia has won. Due to liver inflammation and GvHD, the liver is too damaged to continue with treatment and there are no further...
View ArticleFrom Alex’s Family
Alex was with his family when he passed peacefully earlier today, Wednesday, February 27th. We would like to thank everyone across the globe for their love and support. It meant a lot to us and Alex...
View ArticleIn Memory of Alex
Alex expressed a wish to have people sign up for Be The Match Registry. Signing up means volunteering to be listed as a potential blood stem cell donor, ready to save the life of any patient in need...
View ArticleIn Memory of Alex (Donation Link Update)
We, his family, have coordinated with OHSU (Oregon Health and Science University) to create a web page for people to make donations in Alex’s name. The donations will go to the Adolescent and Young...
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Where to Donate in Alex’s Memory
Please consider donating in Alex’s name to Oregon Health & Science University and registering to be a bone marrow donor with Be The Match. If donating to OHSU select the “Tribute Gifts” check box,...
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